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How to organize a parent’s medical information: a checklist

· 5 min read · Vita Health Coach

The short answer

Start with a one-page summary of your parent’s conditions, allergies, medicines and contacts. Then gather the doctor and insurance details, legal papers such as a health care power of attorney, and recent test results and hospital records. Keep it in one place, update it after every visit, and make sure a second person knows where it is.

Start with a one-page summary

The one-page summary is the most useful thing you can make. In an emergency room or at a new doctor, it answers the first questions in seconds. Write it with your parent, so it reflects what they know and want shared.

Keep it short. If it runs onto a second page, people stop reading. Put details, such as old test results, in the rest of the file.

  • Full name, date of birth and preferred language.
  • Health conditions, with the year each was found if known.
  • Allergies, and what reaction each one causes.
  • Current medicines, or a note pointing to the full list.
  • Past surgeries and major hospital stays.
  • Primary care doctor and phone number.
  • Emergency contacts.
  • Whether there is an advance directive or health care power of attorney, and where it is kept.

Keep a full medicine list

Medicine mistakes are a common risk when an older parent sees several doctors. A complete list helps every doctor see the whole picture.

For each medicine, write the name, the dose, how often and when it is taken, what it is for, and who prescribed it. Include vitamins, supplements, and anything bought without a prescription, such as pain relievers, sleep aids or creams. Add the pharmacy name and phone number.

Update the list every time something changes, and bring it to every visit. Never stop or change a medicine on your own; ask the doctor or pharmacist first.

Ask the pharmacist to review the whole list once a year, or whenever a new medicine is added. Pharmacists can spot medicines that should not be taken together. Keep stopped medicines in a short separate list, with when and why they were stopped.

Doctors, pharmacy and insurance

Next, gather the details you need to reach the care team and handle bills. A simple table works well.

Add your own name and phone number as the family contact, and note which offices have a signed form allowing staff to talk with you.

  • Each doctor’s name, specialty, practice, phone number and patient portal address.
  • Hospitals your parent uses, and their medical records office phone numbers.
  • Pharmacy name, phone number and any mail-order pharmacy.
  • Insurance cards, front and back, including Medicare, any supplement or Medicare Advantage plan, and drug coverage.
  • Home health, therapy or other services, with contact names.

Legal papers

Legal papers say who can speak for your parent and what care your parent wants. Find out which ones exist and where the originals are kept.

An advance directive is a written plan for medical care if your parent cannot speak for themselves. It may include a living will, which records wishes about treatment, and a health care power of attorney, which names a person to make decisions. Some states also use a form signed with a doctor that turns wishes into medical orders. Rules and form names vary by state.

Also keep copies of any HIPAA authorization forms your parent has signed, so you know which offices can talk with you. If your parent has none of these papers yet, the National Institute on Aging has plain guides, and a doctor or elder law attorney can help.

Hospitals usually want to see a copy of a health care power of attorney before they act on it. Keep a scan on your phone so you can show it quickly. Check that the people named in these papers know they are named and have a copy.

Test results and hospital records

Keep recent lab results, scan reports and hospital discharge summaries, sorted by date. When you can see results over time, it is easier to notice a change and ask about it.

The easiest way to collect these is through proxy access to each hospital’s patient portal, which your parent sets up for you. For places without a portal, your parent can ask the medical records office to send copies to you. Under HIPAA, the office generally must respond within 30 days.

Keep scan reports and discharge summaries with the lab results, not in a separate pile. When a doctor asks what happened at the last hospital stay, the discharge summary answers it in a page or two.

If a result worries you, call the doctor and ask how soon your parent should be seen. For chest pain, trouble breathing, sudden confusion or signs of a stroke, call 911.

Keep it current and easy to reach

A record that is out of date can mislead a doctor. Set a habit that fits your life, and tie updates to things that already happen, like a doctor visit or a pharmacy refill.

A short review also keeps the information honest. Ask your parent whether anything has changed: a new symptom, a new doctor, a fall, or a medicine they stopped taking.

  • Update the medicine list the same day anything changes.
  • Add new results and summaries after every visit or hospital stay.
  • Review the whole file every few months with your parent.
  • Keep a printed one-page summary in a known spot at home, and a copy in your bag or phone.
  • Tell a sibling or another trusted person where everything is.

How Vita Health Coach helps

Vita Health Coach, an iPhone and iPad app from VitaMedas, Inc., gives your parent their own file. Lab results, medicines, allergies, conditions, immunizations and visit summaries come in through each hospital’s patient portal, and paper reports can be added by taking a photo of each page. You can ask about any result in plain words, by voice or text, in 28 languages. Vita explains health information and never diagnoses or prescribes, and it is free to try, with paid plans in the App Store.

Questions people ask

What is the first thing to organize for an aging parent?
A one-page summary with conditions, allergies, medicines and emergency contacts. It is what doctors ask for first.
Where should I keep a parent’s medical papers?
Keep originals of legal papers somewhere safe and known, and keep a copy of the one-page summary at home and on your phone. Tell another trusted person where everything is.
How often should I update a parent’s medical information?
Update the medicine list whenever anything changes, add results after each visit, and review the whole file every few months.
What is an advance directive?
It is a written plan for medical care if your parent cannot speak for themselves. It often includes a living will and a health care power of attorney. Forms vary by state.

Sources

Vita Health Coach is an iPhone app that keeps a parent’s hospital results in their own file and explains each new one in plain words. Free to try; paid plans in the App Store.

Vita Health Coach on the App Store

General health information, not medical advice. Vita Health Coach explains; it never diagnoses. In an emergency, call 911 or your local emergency number. Read the medical disclaimer.